by Hotez P, Bottazzi ME, Strub-Wourgaft N, Sosa-Estani S, Torrico F, Pajín L, Abril M, Sancho J. PLOS Neglected Tropical Diseases 2020;14(10) e0008418. doi: 10.1371/journal.pntd.0008418
Summary: A comprehensive patient registry would be a low-cost, yet paradigm-shifting approach to enhancing access to essential medicines and healthcare for the poorest people in the Americas and globally. Such a registry could help answer key questions regarding the epidemiology, disease burden, natural history, and treatment of Chagas disease, and play a critical role in patient care and treatment. The authors suggest several health organizations that could potentially host a Chagas disease patient registry and point out that this public health tool would need to be sustained for 10 to 20 years, thus requiring a consortium of funding institutions to ensure sustainability.
