by Elysium Noma Survivors Association E, Izzett D, Izzett B, Trotter A, Nunes J, Cismas I, Jeantet C, Kabengele E, Benzian H, Gebretsadik H, Merrill L, Ribes M, Comparet M, Sherlock M, Bhakuni H. BMJ Global Health 2025, 10:e019152. doi: 10.1136/bmjgh-2025-019152
Summary: The rise of neglected tropical diseases (NTDs) as a global health category has increased awareness of hitherto unknown health problems; for example, the recent inclusion of noma, a severe gangrenous disease of the mouth and face, in the NTD list. However, the sustained participation of those directly affected by NTDs has not always been a central feature of global health discourses. The authors of this commentary draw insights from a workshop which brought together representatives from advocacy, humanitarian, and academic organisations working on noma and leprosy and outline important steps that must be taken to address neglect through a more inclusive and person-centred approach.
