As part of the World NTD Day 2026 celebrations, this webinar aims to explore the experience of different strategies for collecting, managing, and disseminating data on Neglected Tropical Diseases (NTDs) with the collaboration of health systems, civil society organizations and researchers that can help address critical data gaps and support more informed public health responses. Co-organized by PAHO, the Chagas Coalition, and DNDi, the webinar seeks to highlight best practices and challenges in NTD data management.
Agenda
| Introduction | Chagas Coalition |
| Welcome remarks | Ana Lucianez, NTDs Regional Advisor, PAHO |
| Session 1 – The need to know & the challenge to get accurate data on NTDs | Chair: Ronaldo Scholte, PAHO – Elvira Hernández, FINDECHAGAS: The need to know – Brazilian Ministry of Health: How to face the challenges of collecting data on NTDs at the national level. |
| Session 2: Addressing challenges on data collection and management | Chair: COR-NTD – Martha Saboya, PAHO: How the monitoring panel on progress towards the elimination of communicable diseases can contribute to managing countries’ progress. – Ministry of Health of Colombia & Felehansen organization: Collaborative experience in data review and adaptation between the Ministry of Health and civil society: a Colombian experience (Technical Roundtables for Socializing the Elimination Plan) – Ministry of Health of Colombia: Data analysis and verification: Colombia’s experience towards the elimination of pian – Diogo Galvão, Access Consultant, DNDi Latin America: Chagas Observatory and new global estimates: data, evidence and collaboration for impact. |
| Session 3: Looking outside: Good alternatives to count everyone | Chair: World Heart Federation – Alison Krentel, University of Ottawa, and Annastacia Sampson, Ministry of Health of Guyana: Addressing untreated cases |
| Closing remarks | Sylvain Aldighieri, Director of Communicable Diseases Prevention, Control and Elimination, PAHO |
